The US Citizenship and Immigration Services has served notices to immigrants living under the Obama era “deferred action” program, requiring them to leave the USA. The USCIS, ICE and the Department of Homeland Security made no public announcement of the changes, and the first anyone began to hear of the change of policy was when notices were received.
One such case is Maria Bueso, who has been instructed that she must leave the USA by the 14th of September 2019. She was given 33 days notice. Maria has been in the USA since the age of seven, when she was asked to move from Guatemala, with her family, to the USA to participate in a clinical trial to evaluate the safety and efficacy of a new experimental treatment for a rare life-threatening genetic disease, with which she lives.
Researchers scoured the world to secure enough people with this rare disease and invited them to the Bay Area, in order to complete the research. The drug - Naglazyme (galsulfase) was developed by Biomarin Pharmaceuticals, and was approved by the FDA in 2005.
Maria was one of the trial participants and continues to be treated with Naglazyme, which is an infusion which has to be administered weekly at UCSF Benioff Hospital in Oakland. Guatemala does not have adequate clinical facilities to provide the same treatment. If she is forced to leave the country and her treatment is terminated, in all likelihood she will die in a few months.
A Shot In The Arm is joining thousands of people around the USA calling on the Administration to reinstall the deferred action program and allow Maria to stay and continue her treatment.
We are doing this in two ways
- Reaching out to our elected officials
- Asking Fox News to air Maria’s story and ask them to urge the President to take action.
We would be hugely grateful if you would consider contacting your local elected official and ask them to urge the Administration to reinstall the deferred action program for lifesaving medical treatment. Please also feel free to contact
Congressman Paul DeSaulnier, in whose district, Maria lives
and
If you use Twitter, please retweet @shotarmpodcast tweet urging Fox to act. You can contact Fox news here, and please also consider writing to Fox News’ CEO Suzanne Scott at Suzanne Scott, CEO, Fox News, 1211 Avenue of the Americas, New York, NY 10036.